Open Forum Events are pleased to host a further conference focusing on Palliative and End of Life care. This latest event is the third in a highly successful series of mindful events that brings together those affected by and caring for people nearing the end of their lives.
Approximately half a million people die every year in the UK. Three-quarters of these deaths are not sudden but are expected, requiring specialist care and treatment during the final days, in accordance with the wishes of patients and their families. The Palliative and End of Life Care: Tackling Variations, Eradicating Inequalities conference aims to confront the inconsistencies and seek to provide the answers to providing standardised, personalised care to everyone, everywhere.
Although The Economist ranks Britain as the best in the world from among 80 nations for delivering end-of-life care, there is discrimination and gaps in the quality of provision. Not everyone receives the same standard of care with an estimated 100,000 plus people in the UK not receiving the palliative care that would be of benefit. These variations need to be addressed to ensure, whenever possible, that those who are dying experience a good death according to their wishes and needs. The evidence shows that the discrimination in care provision affects different groups in society and those who are vulnerable due to circumstances on a disproportionate scale.
The Palliative and End of Life Care: Tackling Variations, Eradicating Inequalities conference will seek to address where and why the anomalies arise in the standards of provision and how equity in access, quality and experience can be achieved for all terminally ill people, across all of society. The event will feature a highly informative agenda, presenting speakers who are experts in their field, plus examples of best practice which delegates may feel appropriate to adopt into their own provision arrangements. Delegates will have the opportunity to question, discuss and debate the very latest thinking, as well as share their own stories and experiences with the conference.
Every patient suffering with an incurable and progressive illness deserves the very best palliative and end of life care with their own choices at the very heart. In the UK there have been some significant improvements in the care people receive as they near the end of their lives with some excellent examples provided in different settings. However, the fact remains that the experience for people approaching the end of life can be very varied and for some, the quality of care is unacceptably poor.
How can the variations and inequalities within palliative and end of life care be eradicated ensuring that access, provision and quality is standard for all.
Care providers need to recognize that a ‘one size fits all’ approach only serves to widen the gap in providing quality care. Taking into consideration a person’s background, characteristics and circumstances can help them receive good care whenever and wherever they need it.
The ReSPECT process aims to respect patient preferences and respect clinical judgment through shared conversations between a person and their healthcare professionals. One of its principal aims is to make sure people understand the care and treatment options that may be available to them and that may work in a medical emergency, and to allow them to make healthcare professionals aware of their preferences.
St Helena Hospice has been a joint commissioner of End of Life Care with North East Essex CCG for 3 years. This presentation will demonstrate how we identified local inequalities and how we are addressing them. Examples include the local Palliative care register, our 24/7 Single point of access, the Safe Harbour project (in partnership with Macmillan) which reaches out to marginalised groups, our work alongside the local mental health trust with people with advanced dementia and our current focus on care homes.
Statistics show that patients with a very short life expectancy mostly tend to be keen on talking and communicating about and with their loved ones until their passing away; what if we could go beyond…
WA is a mobile application accompanying its users into a kind of eternity. We believe that although death may end our lives it should never end our relationships.
We are present at the event because we also believe that those affected by End-Of-Life care, need unique and revolutionary relief and final occupation options, not only for the patients themselves but also for their families and their caregivers.
Compassion in Dying has completed a programme of work to engage BAME groups in planning their end of life care, addressing cultural barriers to advance care planning and ensuring that each individual’s beliefs and values are at the centre of decision-making.
Commissioning is key for making sure that the right services are available to meet local need, and that they are sensitive and reactive to the needs of all those approaching the end stages of their lives.
Issues surrounding equity of access to care services and other matters, such as housing, can prevent people to exercise their right to choose how and where they die. Social care professionals can be instrumental in removing some of the barriers in fulfilling patient’s wishes.
If you are awaiting funding you can request us to hold your place today to ensure you do not miss out.
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